Mabel






 This is Mabel.
Mabel was born in the middle of summer heat with the darkest head of hair you have ever seen.  She was tiny and barely cried.

Mabel was diagnosed with Neuronal Ceroid Lipofucsinosis or 'NCL' 2 days after her 2nd birthday.  

NCL's are a group of inherited, neurodegenerative, lysosomal-storage disorders characterized by progressive intellectual and motor deterioration, seizures, and early death.  Visual loss is a feature of most forms. There is no treatment and no cure.  Mabel had the earliest and most severe form.
Her diagnosis was terminal.
Her prognosis: 4-6 years of age.

Mabel left my arms for Heaven on May 29, 2015 just before her 5th early birthday.  


This gift that God gave us is precious.
Everyone who knew Mabel was perplexed by her and yet she brought such complete joy.  She was the greatest gift and although this journey has been long and hard we are thankful for your love, support and prayers.