Learning to live fully in the moment while mothering and navigating through loss & grief.
Those are amazing photos taken with just a phone. I just stumbled across your beautiful blog. I also live in IL and have a child born with a rare skin condition, although it is not immediately life threatening it is associated with an even rarer neurological condition and visual difference/ disfigurement. I enjoyed reading through your blog and my prayers are with your daughter. I bet you like so many parents of children with medical conditions learn to live in the moment. Your children are stunning.
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