Last night I put my guy in the passenger seat of the van and blindfolded him. It was date night and I wanted to give him a surprise.
It was funny to see his reaction when I took off his blindfold and he saw that Steve and Abrian were coming with us. Not a big deal but keepin the love alive, ya know?
On my run yesterday I realized that we hadn't been out alone with them. I wanted to see Daniel but I also didn't really want to be alone because conversation always inevitably comes back to Mabel and Batten's Disease. I wanted a fun, carefree dinner and some laughter.
I knew just who to call.
We had such a fun time and while walking around Wal Mart after dinner, Abrian asked me if someone else was doing Mabel's meds. I had almost forgotten.
It was nice to be 'normal' for a night and just forget for a little while.
In a thrift store before dinner I had an older lady badger me about the fact that I should be wearing heals while I can. I am young and beautiful, she said. I have the perfect body, she said.
And she went on and on for about 5 minutes.
Without the kids, no one would ever know that I'm this mom. What would she have thought if I told her about my baby? Or that I'm a mom of 3 kids under the age of 6.
Who can wear heals while holding a 2 year old all day anyway?
After we dropped Steve and Abrian off, Daniel said to me that he could have cried just because of all the work I went to, just giving him a surprise.
Mission Accomplished for both of us.
Mabel's been a little 'distant' lately. We are doing lots of med changes and adjustments so I always hope that's all we're dealing with. My greatest fear since finding out that she has NCL has been that she will lose her smile. I think I will do fine processing and coping with all that we have been dealt if my sweet girl can just keep her smile.
I had a dream about the race last night. Only 100 people showed up. I ran and everyone else was bicycling yet I still won. Amazingly fast, right?
I will not win the race, of that I'm sure. But I am running this year.
We're hoping for far more than 100 people. We're hoping that this day will change lives.
8 am registration.
9:30 am balloon release, my speech and prayer
Let the race begin!
Let the race begin!
Silent Auction with dozens of amazing items.
T-shirts and bracelets for sale.
Even if you can't run, you can probably walk.
And that alone is a gift.
We hope to see you there!